Alison’s brother and sister (me) and spouses have seen Alison a few times over the past 10 days. She is sleeping more, coming to lucid moments less, communicating more with nods and head shakes than any words. She still seems to understand what is being said, but her ability to communicate out to others is more and more truncated.
It is so heartbreaking to see someone who was so vibrant and life-embracing have all that ebb from her. Her spirit is there, but she has to battle this horrid tumor which has not only robbed her of all independence, but of peace and tranquility as well. Her battle is with episodes of uncontrollable crying. This is just my interpretation, but I don’t think it is an “in-the-moment” emotional reaction to her condition, but the tumor itself asserting itself in those emotional centers of the brain that affect emotion. Talk about a raw deal – a miserable disease that even robs her of being able to be peaceful much of the time.
Kirk and Dani continue to minister to her. She is where she wants to be. She does not seem to be in pain. I hope that when she sleeps that is able to go somewhere light and free…
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when i last saw alison 3 weeks ago she was able to tell me that she planned to swim with the sea turtles in hawaii , my wish is that when she is sleeping, she is swimming with thousands of turtles...
ReplyDeletecindy
I lost the link to the blog and managed to find it through google. I haven't checked in months and I'm so sorry that i've waited so long to try to find it. Please send my best wishes to Alison. I love her so much and wish I could help make her feel better.
ReplyDeleteLove,
Heather (Layla's mother)
ps... I'm sending an email to Alison's gmail account. I'm not sure if she checks it but its a picture I'd like her to have.
ReplyDeleteThinking of you Alison and sending a big kiss and a hug. I love you and miss you much!!!!
ReplyDeletexoxoxo
The Other Alison
Tender hugs and wish you dreams of warm, light blue water, soft, soft sand, and of course, sea turtles.
ReplyDeleteXO - Deirdre
Sweet dreams Alison. Think of you often. I am so glad you have Kurt and Dani with you.
ReplyDelete...gail d
It is so painful to think of such a amazing person fading away from us. I know she is thought of daily by many people who love her. It has got to be so gratifying, yet heartbreaking for Kirk, Dani, and close family members to be with Alison every day. True Alison is where she wants to be and deserves to be. We Love You Alison! Margo
ReplyDelete