Infusion this week

Hi all,

The family gathered this past (rainy) weekend to give Alison and Kirk and little R & R and check-in. She is not sleeping well, so seems pretty tired. Her strength and stamina are diminished, and her vision never got back to pre-surgery levels. So she has some challenges in getting around where there are steps or uneven surfaces. Her emotions are up and down, which - based on poor sleep alone - is to be expected.

Her next infusion of the carboplatin is this week. She did well with the last course, with the only significant side effect being fatigue (and that could have been the meds that counter the nausea). We have our fingers crossed that this treatment will go as well!

Thanks to all of you out there who continue to support Alison and Kirk in your thoughts and deeds!

Deborah

Next step

Alison had another MRI last month that showed some progression, meaning the the clinical trial with the sonic hedgehog pathway drug wasn't working. So she went off that trial (stopped the experimental drug). Her oncologist offered the option of a more standard chemo drug (carboplatin) and she had that infusion latter part of February. She is tired, but otherwise coping well.

Her next infusion will be 3rd week of March.