Monday, December 28, 2009

First week of treatment done

I think the first week of treatment caught up with Alison. While she has some nausea (it has hit in a sort of random fashion so far) and some wicked-bad heartburn, the fatigue is now a prominent factor. Now when she goes to rest, she can actually nap a bit (see, it's a war between the fatigue and the mind-revving side effect of the steroids). On the other hand, I see her moving around her lap top a bit better, or reading a bit, but then she gets tired again. Whit (my husband-unit) was able to set her up with Pandora, that lovely program that lets one pick a song or composer or artist and then it makes a play list out of the huge music database it has. I mention this to convey that our girl is favoring very gentle tunes, those that calm and soothe, not too loud or too much in the way of dynamic variation or even lyrics. I would never have predicted that she would choose Gregorian chants or Renaissance motets as her preferred listening genres!

She has 5 weeks to go with the radiation; the chemo is a pill (Temodar) that she takes every day. Once the holidays are past, she and Kirk are hopeful that some sort of regular schedule will present itself, so that going to Herrick for the treatments will have a more dependable rhythm; so far, the timing of her appointments have been as varied as could be imagined. At some point, I think it will be wonderful for Alison and Kirk if healthy friends could drive her to some of her radiation appointments (Kirk will let us know when).

I think she wants you all to know that while she has good hours and overall good days, she is still acutely aware that her brain doesn't function as it did before. Her memory is impaired, so when she thinks she is going to call or email someone, it may be that she forgets to do that just a few minutes later. She still has word-finding challenges, so typing and even talking sometimes wears her out. She wants to relay that her contact with you all via these messages - and email and voice messages, too - is incredibly important, but she still doesn't have the energy to marshall to return calls or most emails. Keep your stories and touch-bases coming; they mean so much to her. Love,
Deborah

1 comment:

  1. Dear, dear Alison (and Dani, and Kirk): Gabriela here, grateful you broadcast the link to this blog a few days ago (seeing it today now that we are back home in Portland after a couple weeks out of town), because I hadn't heard anything since the first alert of your difficult news to the many people who love you.

    Reading this blog, I am in awe, but not surprised, at how your wonderful family in particular has rallied to your side -- you reap what you sow, my friend, and you have sown a lot of good in your life.

    Like you, Allison, I am not religious (ironically, teaching my daughters' Shabbat school class at our synagogue really clarified my lack of belief in God!) But I do find value in culture and ritual, and love your physics-based philosophy of our interconnectedness, so will be saying for you the Mi Sheberach -- the Jewish prayer for healing. I pasted below a translation -- I'm sorry, I cannot for the life of me remember your mother's name -- there is a place she is named -- and the transliteration of the Hebrew.

    Sending you all my love and wishes for full health,

    Gabriela

    ~~~~~~~~

    Mi Sheberach: Blessing for Healing

    May the Source of Blessings
    to our fathers Abraham, Isaac, and Jacob,
    to our mothers Sarah, Rebecca, and Leah,
    bless the one who is ill, Alison daughter of ___________
    Overflow with compassion upon her,
    to restore her,
    to heal her,
    to strengthen her,
    to enliven her.
    The One will send her, speedily,
    a complete healing --
    healing of the soul and healing of the body --
    along with all the ill,
    among the people of Israel and all humankind,
    soon,
    speedily,
    without delay,
    and let us all say: Amen!

    The prayer in Hebrew transliteration:

    Mi Sheberach
    Avoteinu: Avraham, Yitzhak, v'Yaakov,
    v'Imoteinu: Sarah, Rivka, Rachel v'Leah,
    Hu yivarech virapei
    et haholah _________ bat ______________
    HaKadosh Barukh Hu
    yimalei rahamim aleha,
    l'hahlimah,
    u-l'rap'otah,
    l'hazikah,
    u-l'hay-otah.
    V'yishlah lah bim-hera
    r'fuah shlemah,
    r'fu-at hanefesh u-r'fu-at hagoof,
    b'toch sh'ar holei Yisrael v’holei yoshvei tevel,
    hashta ba'agalah u-vizman kariv,
    v'no-mar, Amen!

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