Dani
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Hello to my wonderful friends and family.
First of all, for those of you who don’t know what’s going on, I’d suggest reading the second blog entry, written by my sister, Deborah. It was written only a couple of days after the surgery and diagnosis, and will explain all the medical details of my situation.
Not all synapses are firing these days but thanks to spell-check and the ability to revise as many times as it takes, I can generally communicate with some manner of lucidity …and then can turn over the job of updating the communications to my wonderful family if I need less computer time.
Been a rough and scary couple of months, with my brain literally scrambled and even basic written communication more difficult than you can imagine. (For instance, it just took me 8 times to type the word “imagine.”) Pretty spectacularly frustrating for a person who has always been so strong with language and communication. So…I’ll be counting on Kirk, Dani, and the rest of my wonderful family to keep people posted and I’ll add my updates as I’m able.
I’ve started my first week of radiation and chemo and I’m at the best place I could possibly be for this treatment (Herrick Hospital/Alta Bates). And the fact that the cancer is a bad one turns out to be a benefit, with better outcomes to the treatment than a “lesser” tumor. (Whoo-hoo!) The medical staff is unbelievably kind, competent, and committed. Shitty situation to be in but I count my blessings on so many levels. I have Kirk who is completely handling every aspect of my legal/financial issues on top of being my primary caretaker (with great assistance from daughter, Dani, and the rest of my family who is supporting me on every level); I have the best possible insurance (thank you union – the Calif. Nurses Association, and CHRO)…you get the idea.
I just wanted to take a minute to let you know that I’m doing my best to maintain optimism and good spirits and that all your good wishes and love and kind words of support and encouragement mean more than I can express. And that just because you haven’t heard from me doesn’t mean I’m not thinking of you and in full appreciation of your love and support. I fully expect communication to get easier as treatment continues, although the fatigue and other chemo/radiation side effects will take their toll, so I’ll join the update team as I’m able.
I’m not a religious person but I believe that we are all connected (yay, physics), and that when people are sending love and support out to others, we can draw strength from that connection and that it can heal from afar. So keep those positive thoughts going for me, however you choose to do it. I’ll take all the positive juju I can get! As completely miserable a thing this is to have to go through, I can’t help feeling how incredibly blessed I am to have so many people in my life who are pouring their love and support out to me in a way that I can literally feel in my heart and soul.
And to those of you who have expressed such strong desires to be of help in some more tangible ways, please know that I am so appreciative of that and that we would love to take you up on your offer…we just are still trying to focus on some day-to-day things that require our undivided attention. (Medical and legal issues…just what you want to be dealing with at a time like this, eh?)
Okay, so that’s it for now. And thank you again for your love, encouragement, and support. There’s just no way I can truly express how it helps me knowing you’re there behind me on all this.
Love,
Alison
I am very excited to see a post by Alison! I know that took a good chunk of your energy, but this way your FANS know you are doing as well as your bloggers claim. And to the cookers out there - some meals she and Kirk could have in the freezer would be great (now we just need to get her a nice little stand-alone freezer!). Love to all, Deborah
ReplyDeleteHi Alison - it's Karen A at work. It is so good to hear directly from you today. Please know that you are thought about with much love and support EVERY DAY in the ICN. (We'd much rather spend time speaking about you and sending you our positive thoughts and energy than suffer through those blasted 10 minute before shift meetings :)
ReplyDeleteI'm very happy to hear about the excellent care you have been receiving.... knowing what a caring nurse you are - you deserve it!
We miss you....be strong.
Love,
Karen
Thanks for the post Alison, it was great to hear from you. Not a PM shift goes by without someone asking "how's Alison?" We miss you and many positive thoughts are continuously streaming in your direction.
ReplyDeleteLove,
Lori
Amazing Lady,
ReplyDeleteBloging! That is great! Actually, you are teaching me how to blog too.
Loved hearing directly from you as well as your family. The pictures
that were posted are precious. What a great idea. I'm waiting for
Santa to make a cameo appearance here tonight... what do you want
to bet that I get coal again? And all I asked for was diamonds and
real estate. Oh, yeah, chocolate too. Sending you warm cozy apple
cider positive thoughts and good wishes.
Love,
Stephanie J.
Hey Alison, it's good to hear from you. I'm sure that blog took forever to write but we very much appreciate it. I've been gone for over a week (in florida for disney world to visit Adam's family)and is now getting my update about your adventures. I just wanted to wish you and your gracious family a very Merry Christmas/Hanaka. Take care.
ReplyDeleteMost happy holiday wishes to you! I'm at work at the front desk on Christmas. We are having a potluck (even though it's one of the few times in the year that CHO springs for food for us). I was on ECMO in PICU the other day, and people were asking about you. I passed on the website address, but I can't vouch for their computer skills. Very glad to hear your headaches are mostly gone. Are they going to prescribe some of the special inhaled medicine
ReplyDeletefrom one of the "Clubs"? Miss you, and sending good vibes your way. Pam
Alison,
ReplyDeleteHappy Holidays! I was happy to read your blog and see that your spirits are up! I am sending positive thoughts your way! Take care, stay strong, and know that we miss you alot! :)
Jen Naugle
Oh Angel Child -- just got the link to this blog today and am so proud of you but not even a little bit surprised by the strength you display. Not even a little bit surprised by the fabulous family and friends that surround you and love you. Not even a little bit surprised by the anger that I feel that you have to go through this nor by the absolute certainty that I feel knowing you will kick the beast that wanted to take up residence in your brain.
ReplyDeleteI love you and am sending a constant stream of good juju. You go girl! I'll keep checking on you. (And love to Deborah, Jon, Dani and the I hope to meet him some day soon, Kirk.)
Huge love - Valerie (Ossipoff - in case that part isn't obvious)
Hi Alison. I am sorry that I am a little late in getting connected, but have been sending you lots and lots of love (juju) since Kate Gordon called. And I am so very sorry that you and Kirk have to go through this. You are such a compassionate, kind, joyful and strong person and I know you are surrounded by so many people who love you. I was so incredibly moved by your kindness and quiet support when I was sick, and I really want to do the same for you. Sitting quietly, watching a movie, bringing lunch/dinners, rides to appts, etc.... Count me in! (That includes the nurse-y stuff too-I am an adult nurse after all!)
ReplyDeleteAnd I know there are so, so many people who want to be close and if it feels like too much to visit, I can always be dropping dinner or goodies off on the porch or to Kirk and Dani. In fact, I have a little care package for you now. Look for it on your porch in the next few days.
You are such a strong and courageous woman and I know you are a fighter. Please know that I am sending you much love and many, many healing thoughts. Thanks for sending this blog!!!! Love Karen Covert
To Kirk/Dani: I am a friend of Alison's from the ICN and would love to start dropping off food or other goodies that might help things easier. I will be dropping a care package off on the porch in the next few days and was hoping I could bring dinner too, if it would be helpful.
Do you have a food drop-off coordinator? Kirk, I know you are a wonderful cook, but if it would be helpful to have dinners dropped off on treatment days, or scheduled every few days, I would love to help coordinate that with friends/family. I'm sure the ICN folks would fill up the next 2 months alone!!
Feel free to contact me at: kacovert@gmail.com or (510) 851-2373 and I will be looking for updates here too. I hope you are taking good care too. Karen