Alison saw her main radiation oncologist today. They are trying a new regimen of medication to control the hyper-hunger/shaky thing - actually, Ativan, which is kind of a miracle drug in the oncology world. Heck, she really doesn't drink (alcohol) these days, so this is a nice option for taking the edge off. She had good luck with this yesterday; it helped her rest well, get up with good energy to do a bit of 'organizing' of some of her stuff, which pleased her. I think she should put it in a martini glass and have it as the sun goes down. We can toast her from whereever we are.
Her platelet count was a bit low (platelets are involved in blood clotting processes) - not so low as to be dangerous, but her physician was careful and is having her hold off on the medicine until it climbs back up. It's a known side effect of the Temodar, so she'll monitor her platelet count and get a little break from that medicine.
That's it for now. She seems to be in reasonable spirits, all things considered. She is amazing!
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Hang in there!
ReplyDeleteHi Alison, I'll be brief: Wow, you've had a rough time lately. Glad the ativan is working some. And it's wonderful that you're able to decrease the steroids. Very good news. Hope you're able to get your nose outside some now that the sun is peeking through a bit. Sorry you're having such a struggle with hunger and the "hypoglycemia" crashes. Sounds awful, tho' I understand it has improved somewhat.
I love having your blog (thank you, thank you) to check to see how/what you're doing, because my thoughts are with you and Kirk in this incredibly hard time. Is he able to rest enough and do what he needs to do to stay fairly whole so he can help you? My heart goes out to him also because I know, first hand, how tough being the caregiver is, in so many ways.
One of the most horrible human experiences anyone can have is to watch your loved one suffer and to feel so helpless to stop it. Really awful.
Well, I hope things improve over these last couple of weeks of tx. GOOD LUCK! I'll be in touch, Susan (Dixon)
Hi, Alison and Kirk--I am sitting at my desk thinking of you both with concern and love. Your friend,
ReplyDeleteDiane Bellas