Have had a good couple of days. Can now make it up the full flight of stairs without stopping and without getting overly winded. Yay, hooray.
I've tapered my decadron dose again, so I'm now taking one mg three times a day. Pretty big change from my original 16 mg/day. I'm hoping I'll start to see a real difference in my appetite over the next weeks. What a relief that will be.
I had a really nice visit today from my aunt Barbara, my mom's youngest sister. (Shhhh...She was always my "favorite aunt," and although we haven't seen much of one another in many years, or even had much contact, she's an important person in my life.) She's driving down to Southern California from Olympia, Washington, and made a side trip to visit me. Barbara, Kirk, and I did some hanging out at the house and then walked for a bit in Tilden Park, where I continued to show my improved physical endurance and walked for probably 2/3 of a mile. (So I'm feeling pretty good about that.)
Watched the Oscars, talked briefly to Deborah for the first time in almost a week (she's been at a choral convention singing her little heart out), and am waiting to hear from Dani, who's off singing HER little heart out at her regular Sunday night gig.
So that's all there is to report for now. I'm liking this trend of getting stronger, feeling better...
Love to you all,
/ab
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Way to go Al,
ReplyDeleteWe like improving trends.,
You seem to be tracking with the weather.
We've had a dark and extended winter...followed by the surprise of a longer period of fluctuations between the gloom of rain and the smile of sunshine than usual.
But we are starting to get more frequent visitations by radiant weather and there is every reason to believe that, after all those extended transitions, the first real glimpse of spring-like conditions are about to emerge. It can't help but bring a smile to us all.
Thinking of you,
Michael
Hi Alison!
ReplyDeleteSo nice to hear your "voice" on the blog. I think of you often, and I am glad to hear that you are having an easier time. Keep up the good work, and remember your support team in the NICU continue to send you good thoughts and well wishes. We miss you!
From Carol H. and all the pm crew
Hey Alison,
ReplyDeleteSo glad to hear that your getting out and about.We are ramping up our Relay For Life efforts by planning a mini relay at school on March 26th. Some of the cancer stories I hear make me really want to go after this disease. It affects so many. We are praying and raising money. Lots of love and hugs to you this gray day. Diane and Timothy
Thinking loving thoughts about you and Kirk and sending them your way,
ReplyDeleteDiane Bellas
hey alison,
ReplyDeletesending all my love to you all the time. hope you're enjoying some of this springy weather. sometimes a little sunshine goes far.
-kate g.
Hi Alison,
ReplyDeleteI am so glad you are feeling more like yourself!!! My mom was really happy to see you. We love and support you always!
Thanks for keeping us posted on your journey.
I love you,
Hannah