Hopefully, Alison is having a smooth day today. Yesterday, I got an early call because AB was having excruciating knee pain. After some discussion, we had concerns that she could have a blood clot in her leg. She ended up with a doctor's appointment and then a test to look for clot (duplex ultrasound) and thank goodness, it was negative (NO blood clot). So while relieved, it did take a big chunk out of her day, filled with worry. She says it's so hard to be a "patient" all the time, and of course, when one's condition makes things like blood clots a reasonable possibility, there's plenty to stay worried about. We really don't have a definite explanation for what hurt so much, and now seems better - maybe a flare of inflammation as her steroid dose is decreased? She is still physically weak after her 10 day hospitalization, so her reserves are depleted. BUT, she is working on increasing her activity, getting strength back into her muscles. She looked pretty good when I saw her. Daughter Dani was there for a visit, so I know her spirits will be raised with that bubbly one there.
Next planned medical outing is Tuesday at UCSF. She will have a new MRI to see where things stand, and then an appointment with the neuro-oncologist there. For now, a smooth, event-free weekend would be welcome!
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